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February 28 is Rare Disease Day 🎗️

Keratoconus Group
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Hello everyone!
February 28 is Rare Disease Day, an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.
The first Rare Disease Day was celebrated in 2008 on February 29, a rare date that happens only once every four years. Ever since then, Rare Disease Day has taken place on the last day of February, a month known for having a ‘rare’ number of days.
Rare Disease Day is for everyone, the general public, rare disease patients, their families, carers, healthcare professionals, researchers, companies and politicians. You do not have to be directly affected by a rare disease, everyone can get involved.
On RareDiseaseDay.org you can learn how to get involved and find information about the thousands of events happening around the world on the last day of February.
What is a rare disease?
In the United States, a disease is considered rare if it affects fewer than 200,000 Americans. Other countries have their own official definitions of a rare disease. In the European Union, a disease is defined as rare when it affects fewer than 1 in 2,000 people.
Is keratoconus a rare disease?
Keratoconus is found in all parts of the world and in all ethnic groups. The incidence and prevalence rates reported in the medical literature for keratoconus tend to vary widely. One long-term study in the United States indicated a prevalence of 54.5 diagnosed individuals per 100,000 individuals in the general population, or approximately 1 in 2,000 individuals, however, it seems keratoconus is more common than we think and recent studies suggest a significantly higher prevalence.
Change your profile picture for Rare Disease Day
Changing your profile picture is easy. We have created Rare Disease Day overlays that you can add to your Facebook profile pictures with just one click.
Our overlays are only available for Facebook. If you wish to use this on your other profiles, you can first add the frame to your Facebook profile picture, and then use that photo on other platforms.
“I AM RARE” 👉 https://bit.ly/IAmRare
Click on the above image to get the "I AM RARE" overlay.
Click on the above image to get the "I AM RARE" overlay.
“I LOVE SOMEONE RARE” 👉 https://bit.ly/ILoveSomeoneRare
Click on the above image to get the "I LOVE SOMEONE RARE" overlay.
Click on the above image to get the "I LOVE SOMEONE RARE" overlay.
Can you help us?
Rare diseases affect an estimated 300 million people around the world. There are over 7000 different diseases, so rare is not so rare after all. Support the rare disease community by spreading the word. With your help, we can raise awareness and increase support for research.
Please forward this email to your friends, and share this newsletter on your socials. Talk with family, friends, and colleagues, about rare diseases, about why this day matters to you, and about rare diseases’ impact on your community.
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Keratoconus Group
Keratoconus Group @KeratoconusGRP

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